Maggie has had a few really good days. The solid rest continued yesterday, and I think a lot of it has to do with the fact that she is holding in her own heat! They were able to start swaddling her and turn off the warmer, so I think she is just much more restful now, feeling more secure being wrapped so tightly.
They upped her feeds a lot today. She started out two days ago getting 5 cc's of milk every 4 hours, and now they are up to 15 cc's every 3 hours! Crazy! She is handling it really well though, so they feel like it's a good sign. The scary part for us is this: once they get her feeds up to full feeds they are going to try to take her off of the ventilator. While that is our end goal, it is very scary. Last time it didn't go well, and if it doesn't go well again we have to make a really tough decision. Please pray that she will breathe and not need a tracheotomy.
They have also been able to turn the settings on Maggie's ventilator down quite a bit lately which is pretty neat. She isn't needing as much help as she did before.
There isn't a lot to say today accept for me to thank all of the generous people who have been taking care of our physical needs. In the past two weeks we have had car repairs done, our lawn mowed twice, a hotel room purchased in our name so we have a close place to rest, and so many monetary gifts towards the medical bills that will certainly be enormous.
While I haven't been able to post every day I'm trying to line up a few guest writers, mostly family, to give a little different look at things. So you can look forward to that soon! I'm also planning to write a long-form essay soon that I will post on a different page of the blog so everyone doesn't have to read it.
Last night I got to celebrate Maggie's two-week birthday with her. It was a nice time. She was asleep, but it was still neat. Not too long ago I was pretty sure we would never get to do that. Another battle my mighty little girl has won.