The surgeons who do the special surgery Maggie requires only work out of this hospital, so we had to make the move. It was tough. The physical location change of her wasn't a problem, but the emotional movement was. We felt safe there. The nurses and physicians who took care of us were incredible, and for the first time in a long time we felt comfortable and were even able to rest. Maureen was a tremendous nurse in labor and delivery, and Nancy, John, Joe and Terri let us breathe and sleep easily while Maggie was in the NICU. I'm a crier on a good day, but the tears really started to flow when we told the nurses goodbye this morning. Emotional exhaustion sucks.
Maggie is doing well. They changed the style of ventilator she is on to stabilize her for the surgery, but the doctors said that's a step up and her breathing is looking good. Dr. Suh even said this morning that he thinks they should be able to extubate her after she recover from the surgery. That means she will be breathing without a tube in her throat!
The tube to her lungs goes right through her vocal chords. I can't wait to hear her voice. I want to hear her cry. I'll never complain about her crying.
God has answered two of our prayers so far and I want everyone to know that. The third we won't know about for just a little bit longer, but it's looking good so far.
1) We haven't had to make any hard, life-changing decisions. God was faithful.
2) God has been glorified through our lives and our story. More than 1,000 people are reading our blog every day for updates, hearing just how good our God is and how he is working.
3) The third prayers has always been that God would allow her to live if her life would glorify him and be a life worth living, and if that wasn't the case that he would take her quickly to be with him. God, please be faithful.
Surgery is set for sometime tomorrow, but we don't have a time yet. I don't have a lot more to say, but I want everyone to know how blessed we feel. I've said it before, but I want everyone to hear it again. Yes, it is painful to know the situation my only child is in, and we are in it with her. But we still feel incredibly blessed. The love and outpouring of our friends and family has been amazing and I know this is love from God thanks to the prayers of those who can't be close. Thank you all. We are blessed.